Some Notes:
Also, this post is accurate based on the best recollection
of the events. I do realize that medical technology and procedures have
improved over the past 35 years. If I have made any technical or terminology errors,
please message me privately.
Because someone, somewhere, surely needs to hear this …
In review, the doctor delivered the following prognosis the
day after Allison was born:
1. Your
daughter probably won’t survive today.
2. If she
survives today, she probably won’t survive tomorrow.
3. If she
survives tomorrow, there is a critical time in two weeks that she will have to
get through.
4. If she
makes it through that, she will live with severe brain damage.
We had made it through the first two hurdles fine. Allison
was progressing well, considering the circumstances. I started to feel much
better, and was hopeful.
But it was a false hope.
The doctor didn’t explain the complexities Allison would face
at the two-week juncture because you are not expected even to get that far. And
I didn’t ask about it because I was overwhelmed by the immediate danger. But the doctor didn’t say there “may” be a critical time.
He said “is,” and almost two weeks had passed and now the cold reality was explained
in very stark terms.
The cerebral hemorrhage Allison suffered causes the brain
fluid to thicken. She will need a shunt inserted into her brain, the same type used
for hydrocephalus patients, to drain out the contaminated fluid. If the fluid
isn’t drained, pressure builds up in the brain, leading to a slow, painful
death.
However, the doctor wants the thickness of the brain fluid to
be at 200 mg/dL for this operation to have a good chance of success; he won’t
even operate if the reading is above 300. If the fluid is above 300 mg/dL, you
are caught in a literal deathtrap: An operation is needed to drain the thick
fluid out of the brain, but the fluid is too thick to allow the operation. The
body does generate new fluid every day and drains out what old fluid it can.
So, the doctor will run an initial test to see how thick Allison’s fluid is and
then run tests every other day to chart her progress.
On Thursday, they run the first test, and our family and
friends begin praying that Allison will be able to have the operation that
could save her life. My prayer is a little different than that, however. I am
analytical by nature, and the Baptists instruct you to pray very
specifically. I pray that the test will be at 300. This is prayed without
ceasing. It is prayer fervently and repeatedly.
Over and over - 300, 300, 300, 300.
The first fluid is drawn on Thursday, and on Friday, we
learn her fluid is at a reading of 720. This is not good news. 720 is a long
way from 300, but it is only one data point. I don’t know how fast this fluid
is draining until I get a second reading. But I do know we are running out of
time. I continue to pray – 300, 300, 300, 300.
They draw more fluid on Saturday. We wait anxiously Sunday for the test results.
The phone rings just before 7 p.m. My wife takes the call, then turns to me and
says, “The test came in at 690.”
Instantly, I realize the literal gravity of the situation. Now
I have a second data point, but there is nothing to analyze. You can do the
math without a calculator. The fluid thickness had only gone down 30 points in
two days. It needs to go down another 390 points. At this rate, it would take
26 more days to reach 300, and I’m not sure she has another 24 hours.
“I’m going for a walk,” I blurt out, as I grab my coat and bolt
out the door.
I turn back for home after about a mile because if I don’t,
I’m not sure how far I might end up walking. At that point, I have burned off
most of the raw emotion and begin to think clearly again. But I am still enraged
at everyone and everything, and especially at God. We had made it through long
odds, and now after going through two weeks of hell, this was going to end with
her slow, painful death. That is unacceptable to me. So, if prayer is loosely
defined as “communicating with God,” then I guess I said a prayer.
I’ve have been brutally transparent to this point, but the
contents of this prayer will remain between God and me. It is my worst prayer I
have ever offered, but if God values our honesty, then it is also my best.
I am about three minutes from home when I finish telling
God exactly how I feel. And suddenly, I am at peace. But not your typical
peace. The peace The Book talks about that surpasses all human attempts to
understand it. And this is a surprise. For the first time in two weeks, I am back
in control of my emotions. I am willing to accept the inevitable no matter how
painful it will be. There would be no more prayers for “300”.
That evening I start thinking about life beyond this
horrible event:
What will the funeral be like?
How long will it take my wife and I to recover
from this?
Will our marriage even survive this tragedy?
I go to work the next morning knowing there is a good
chance my phone will ring sometime this week, and the struggle will be over. Of
course, this is before the days of cellphones, so every time my office phone
rings on Monday, I hold my breath before answering and then exhale when it
turns out to be a dealer or salesperson on the line. It is a variation of
Russian roulette played with a phone instead of a gun. This was going to be a
brutal week, not knowing when that critical call would arrive.
But I didn’t have to wait long. Around 9:45 Tuesday morning,
my wife calls. Instinctively, I grab the
edge of my desk with my right hand, bow my head, and close my eyes, bracing for
the worst. However, my wife is calling to tell me the results of the Monday
test. I had forgotten that they were even drawing more fluid. Why even bother?
We were 390 points away from 300, more than double. More bad news would just add
to the torture.
However, my wife is talking so fast that I can’t make out
what she is saying. I ask her to slow down and repeat it. This time I can
clearly hear her words, but I can’t comprehend what I just heard. I ask her to
repeat it one more time. “The test came in at 300”, she says, slightly irritated at
having to deliver the message a third time. “She’s scheduled for emergency
surgery tomorrow morning.”
After the call ends, I sit there with my head bowed,
holding the receiver in my hand, trying to process the inconceivable news I have
just received. I am stunned, and I begin to shake (more about this moment in
Part 5).
It takes a few minutes for me to regain my composure, and I
inform my boss that I will be out of the office on Wednesday. While this is great
news, it just means my two-week-old daughter can undergo delicate brain surgery,
which has a limited chance of success.
Next, Part 5: (I Will Fear No Evil)