Please be sure to read Part 1 and Part 2 first … because someone, somewhere, needs to hear this
Summary: My daughter suffers a severe cerebral hemorrhage
at birth and is not expected to live more than a day, or maybe two. After
getting this horrible news, I go to the children’s hospital to see her.
I follow the nurse down the aisle to the back walk where
the most-critical babies are located. We turn the corner, and in the middle of
the row, I see the name “Allison Ake” on the isollete. The nurse keeps walking,
but I stop a good five feet away, stunned by what I see.
The nurse turns around and is surprised that I’m still
standing in the aisle. She quickly backtracks and asks, “Can I get you
anything, Mr. Ake?”
“Yes, I need a glass of water and a chair. Oh, and please
bring the chair first.”
I answer her question, but my eyes never leave the
isolette. Most fathers delight in seeing their day-old daughter, but I am
staring at the most frightening scene of my life. There is my daughter lying in
the isollete. Her arms are raised up, firmly against the sides of her head, her
fists tightly clenched. Eyes shut, she struggles for every breath, and there
are tubes and wires everywhere.
I can’t take another step forward. I’ve stopped
instinctively, because I’m in a dangerous situation, like when you get too
close to a blazing fire or a ferocious animal. But in those instances, you
would back away or even run. And I want to turn and run, but I can’t, because
the name on the isolette says “Allison Ake” and that means this one, no matter
how damaged, belongs to me.
It is more than a gut-punch. It’s as if a warhead has been
fired right through me, removing my gut, but leaving me alive to deal with the
pain. I stand there frozen, but inside, my heart is racing as I absorb the
stone-cold reality before me.
The nurse returns with the chair and places it beside the
isollete, because of course, I can’t sit in the aisle. I take the four steps
forward and slide quickly into the chair as I feel my knees weaken. I sit
slumped over, staring at the floor, as the nurse leaves to get my water.
The nurse returns, and I take a gulp. She asks me, “Mr.
Ake, do you have any questions?”
Now you would think the obvious question is, “How is she
doing?” But even though I have only been a father for just a little over
twenty-four hours, I am in full-dad mode.
“What’s wrong with her arms?” I ask.
“The cerebral hemorrhage your daughter suffered causes
intense seizures, she explained. “She put up her arms to fight off the shocks
to her brain, and they locked in that position. It’s rare for them to survive
seizures that strong, but she did. She’s a fighter.”
I stare at the nurse in disbelief, just as I had when the
doctor had given me the prognosis earlier. The nurse returns to her duties. I
sip some more water, and the emotions start raging out of control again. I want
to scream, but I can’t because that would distract the doctors and nurses doing
their jobs in the ICU.
I turn and look at Allison, my face inches from the isolette
–
Breathe in … Breathe out … Breathe in … Breathe
out
Here, time is measured in breaths, and at the back wall
of the ICU, every breath is vital.
I feel some fatherly pride. This tiny, day-old kid had
fought off certain death. And it is not surprising that the offspring of two
strong-willed, stubborn people had not died when she was supposed to. I vow to
stay there with her all night – if she makes to the night.
However, I wasn’t prepared for the intense situations that
occur on the back wall of the ICU. The monitoring alarms for the critical
babies sound every fifteen minutes or so at random. Every time it is an emergency,
life-threatening situation, and six doctors and nurses rush to the isolette to
keep the baby alive. As things stabilize, one by one, they leave to tend to the
other infants.
It is like sitting in hell on earth. Every time this scene
is repeated, it shocks me to my core - not knowing if that baby is going to
survive and not knowing if Allison’s alarm will be the next to sound. It is a
psychological torture chamber that I wouldn’t wish on my worst enemy.
In that environment, I am unable to stay with her all night;
I can’t even last for two hours. I take a long look at Allison before I leave.
I realize it might be my last look, but I sense I would be coming back. I return
to the regular hospital to report back and comfort my wife.
I go home that night to an empty house, feeling much
different than when I left nine hours earlier. I am alone and horrified. I lie
down in bed terrified, and six hours later, I open my eyes, and I remain just
as terrified. I call my wife and am relieved to hear that Allison has made it
through day one.
I return to that torture chamber on day two. I still need
the chair, but I don’t need the water.
And she’s still breathing …..
Breathe in … Breath out … Breathe in … Breathe
out
But it’s still brutal to sit in the ICU again with those
monitor alarms going off. I last about the same two hours again.
King David writes in The Book: Yea, though I walk
through the valley of the shadow of death, I will fear no evil.
And you don’t grasp the magnitude of those words until you have
to take that walk yourself. Because I am surrounded, maybe engulfed, by evil
every step that I take. It is ever-present, ever threatening, every second of
the day. And David is a much better man than I, for I fear the evil. I fear the
evil with every breath I take. I am more afraid than I have ever been in my
life.
But Allison does make it through day two. The immediate
threat has passed, a huge victory given the dire odds. The next eleven days
bring a series of small victories. She lowers her arms to a normal position.
She opens her eyes. And her isollete is moved a few rows forward, off of that
perilous back wall.
I start to feel much better about the situation. I can
breathe normally again at last. I can finally see some light at the end of this
dismal tunnel. My hope is rising. And I feel that exhilaration of beating those
terrifically long odds - when everyone literally leaves you for dead and yet you
survive. We had narrowly dodged two bullets, and I feel bulletproof.
However, if you remember the prognosis, there is a critical
point that happens at the two-week juncture. Of course, I forget about all
about this part because I have been so focused on the progress she is making
day-by-day.
But a third projectile has been fired at Allison. And this shell
is not a bullet, but a missile. There will be no dodging this one.
Next: Part 4 – “300”
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