Tuesday, March 24, 2020

The Valley of the Shadow of Death – The Allison Chronicles – Part 2


(Because someone, somewhere, needs to hear this)

Yea, though I walk through the valley of the shadow of death, I will fear no evil …

Part 1 Summary – My daughter has suffered a severe cerebral hemorrhage at birth. The next day the doctor gives me the following prognosis:

1.    Your daughter probably won’t survive today.
2.    If she survives today, she probably won’t survive tomorrow.
3.    If she survives tomorrow, there is a critical time in two weeks that she will have to get through.
4.    If she makes it through that, she will live with extensive brain damage.

No Hope

There’s no hope in that statement. I immediately sit down in that hospital family room with my wife and her parents, and no one utters a word. There is really nothing to say, and I am having enough difficulty breathing to be able to speak.
It’s one of those rare moments when you experience a full dose of negative emotions all at the same time. Pain, fear, anger, grief, despair, anguish, heartbreak, anxiety, and panic – lots of panic.

It feels as if my brain is on fire, randomly firing emotional pain and turbulence throughout my body and there is no way to stop it. My emotions rage like a hurricane, spinning out of control.

And there were no prayers, either silent or as a group. Because exactly what do you pray for? There is no hope for your situation. You literally don’t have a prayer. Only pain - lots of pain.

But despite this internal torture, I start to become a father. I begin to think like a father. The fatherly instincts kick in. Fathers protect their children, fathers provide for their children, fathers fix things for their children. Men are wired to take action. But what can I possibly do?

I am reminded of the story in The Book of a man (his name is Jairus) who was told by a doctor that his 12-year-old daughter was going to die. He goes and finds The Man and brings him to his daughter. The story ends with the dead girl being brought back to life. We tend to focus at the miracle at the end of the story and read past the beginning. Here we have a father who loved his daughter so much he risked his job, status and reputation on the sliver of hope he could save his daughter. Without those actions, there is no story – none.

It’s Time To Act

I decide I have to do something – anything. The adrenaline starts pumping and the brain gets focused. It doesn’t matter if this action makes any sense or difference at all. But I will not just sit in that room waiting for my daughter to die. I quickly rise to my feet and announce: “I’m going over to Children’s Hospital to see her.”

And it was an announcement. Everyone in the room is stunned. They all know how I dislike hospitals and avoid them whenever possible. Sometimes I would get nauseous and light-headed when visiting people. Under these dire circumstances no one would expect me to go anywhere near there. This action was completely out of character. But fatherhood changes a man, and in this case, I was maturing by the second.  It was time to step up, even if I didn’t expect to be a father much longer.

But once I made this decision, I was in a raging rush to get to my daughter as fast as possible. I bolt out the hospital and jump in my car. It is one of the most challenging drives of my life. I am delirious, not in control of my emotions or senses. I am in no shape to drive.  Fortunately, the hospitals sit just over a half-mile apart. But, of course, I hit every red light and the tension every time the car is stopped is unbearable. At the first red light, I start hyperventilating and have to lean forward onto the steering wheel, and  totally focus on keeping my foot on the brake.

And it was during this short trip that I offered up the first prayer for my daughter. It was not a good prayer. It’s the type of prayer we should never make. We are never supposed to bargain with The Creator. It is always wrong do that. But I’m delirious, and I’m not thinking about what a righteous, appropriate, holy prayer might sound like. But putting myself into motion gives me that sliver of hope and if you have any hope at all, you’ve got a prayer. So, as flawed and as misguided as is was, it just flowed out:

God, if you let her live, I promise I will raise her the best that I can”

I get to Children’s Hospital and there are the typical series of delays. I have to show I.D. Then I have to find the ICU. I finally get to the ICU waiting area   and then I still can’t proceed because I have to “prep”. I can still remember vigorously scrubbing my hands with the surgical-grade soap, it felt good to burn up some the nervous energy. I put on a protective gown over my clothes and then wait some more for the nurse to return. I anxiously stand there trying to maintain my composure and just want to burst through that door and see my daughter.

Welcome to the Valley of the Shadow of Death

Finally, the nurse returns and motions for me to enter. It is a large room with rows of over 100 sick babies in isolettes. My anxiety level rises. I start to doubt whether this was a good idea. Everyone of these babies have parents and everyone of these parents are going to hell on earth. It is the most depressing room I have ever encountered.

There is a specific order to where the babies are placed in this room. The patients are initially assigned spots based on the seriousness of their condition and then as they improve, are moved towards the wall by the door. The closer you are to door, the closer you are to leaving the ICU.

The nurse leads me down the side aisle at a good pace. Being in a room of sick babies hits me hard. I begin to realize the gravity of the moment. This is a place of life, and a place of death. And I can see the shadow. I can feel the shadow. I can smell the shadow. Yea, I am walking into the valley of the
shadow of death. 

The nurse keeps walking. All the way down to the last row of isolettes on the far wall. We turn left and she stops. I may have thought I was prepping in that waiting area. But I assure you, there is nothing, absolutely nothing in life, that could have ever prepared me for this.




Tuesday, March 10, 2020

Welcome to Fatherhood – The Allison Chronicles – Part 1


Because someone, somewhere, needs to hear this…

I’m rewriting this introduction after I finished writing this post. This event happened 35 years ago, and I’m telling the complete story for the first time now. And the reason is, it is exceedingly painful to relive the worst day of your life and its aftermath. It is distressing to re-experience those emotions. What you are about to read is a narrative of my trip through hell. The keyword, though, in all of this, is “through”.

I never wanted to tell this story before, and honestly, I don’t want to do it now. But I have been instructed to, or more like, commanded to. (some of you will understand that last statement) And after writing this first post, I now realize that I do my best writing when I am in great pain. I surmise that maybe this is why many of the great writers were drug addicts or alcoholics.  

This is an extremely personal story. I will reveal details that are uncomfortable to discuss. It will be almost totally transparent. The story is entirely accurate to the best of my recollection. This is important because there is one key moment that will be difficult for you to believe without a great deal of faith. Revealing this part of the story is so troublesome to me that I had to ask my friend Reverend John, the first person outside my family to ever to hear it, if I should include it. He said, “You have to. Because it is a story of hope, and somebody needs to hear it.”

Therefore, I am writing this because I have been instructed to do so, and somebody needs to hear it. I am not doing so to elicit any form of pity. I don’t want you to sympathize. This is about you, not me. The worst emotion you can express to me is pity. Yes, expressing pity towards me is actually worse than disagreeing with me. It’s a personality defect buried deep in my DNA, and probably another reason this story has never been shared before now.

Life is such a complicated existence. You control much of it through the decisions you make. And then there are those random, life-altering events which can impact us more than all the seemingly important choices we can
ever make. And sometimes there is a bitter irony to these circumstances, the type of randomness which would have one of the best days of my entire life, followed by my absolutely worst day ever.

Welcome To Fatherhood

On Saturday morning, my first child was born. We named her Allison. I was in the delivery room but didn’t actually observe much since any mention of blood, or even medical conditions make me extremely queasy. It was an uncomplicated, easy birth with no problems. After spending time with my wife and daughter, I headed home, totally immersed in the euphoria of new fatherhood.

The first indication of trouble was when my wife called that evening to inform me that Allison had been transferred to Akron Children’s Hospital. But this didn’t alarm me at all. During our child-birthing classes, they had told us that babies get transferred to there all the time for minor, routine ailments and not to worry if that happened.

So, I was not concerned. However, I was upset that they did this. It would delay us from bringing Allison home and interfere with my schedule. This is an example of how selfish of a young man I was. This tendency may have eventually destroyed my life. But my perspective on many things, even life itself, was about to change drastically. I just didn’t know it yet.

The next morning, I went to church and received the joyous congratulations of all my friends, still basking in the exhilaration of being a new father. I headed back to the hospital to see my wife right after lunch.

I did think it was odd that my wife was not in her room, but I was still clueless about the severity of the situation. I sat down and waited, watching the Browns game on a 5” hospital television. However, I began to feel uneasy as the minutes passed.

Eventually, a nurse appeared. She seemed surprised to see me. With a blank expression, she said, “Mr. Ake?” (I nod) “Please follow me.”
Before I could ask a question, she spins out of the room, and I have to hurry to catch up. It was about this time that the feeling of impending doom arrived. It would be an extended stay.

She led me to a “family waiting room”, where my wife and her parents were sitting. They are distraught. They uttered greetings and returned to staring at the floor. I knew that my daughter wasn’t dead because no one was crying, but things had to be bad, really, really bad.

When I asked what was wrong, my wife holds up her hand and tells me to wait for the doctor. The answer to the question being too painful for her to even say.
The doctor soon appears and informs me with a straight poker face and no emotion in his voice that my daughter suffered a severe cerebral hemorrhage at birth. He then delivers the following prognosis:

1.    Your daughter probably won’t survive today.

2.    If she survives today, she probably won’t survive tomorrow.

3.    If she survives tomorrow, there is a critical time in two weeks that she will have to get through.

4.    If she makes it through that, she will live with severe brain damage.

There was not much hope in that statement.

Welcome to fatherhood. I hope you enjoy it, because it isn’t going to last very long.

End of Part 1

Next time: Part 2 - The Valley of the Shadow of Death