Because someone, somewhere, needs to hear this…
I’m rewriting this introduction after I
finished writing this post. This event happened 35 years ago, and I’m telling
the complete story for the first time now. And the reason is, it is exceedingly
painful to relive the worst day of your life and its aftermath. It is distressing
to re-experience those emotions. What you are about to read is a narrative of
my trip through hell. The keyword, though, in all of this, is “through”.
I never wanted to tell this story before, and honestly,
I don’t want to do it now. But I have been instructed to, or more like,
commanded to. (some of you will understand that last statement) And after
writing this first post, I now realize that I do my best writing when I am in
great pain. I surmise that maybe this is why many of the great writers were
drug addicts or alcoholics.
This is an extremely personal story. I will
reveal details that are uncomfortable to discuss. It will be almost totally transparent.
The story is entirely accurate to the best of my recollection. This is
important because there is one key moment that will be difficult for you to believe
without a great deal of faith. Revealing this part of the story is so
troublesome to me that I had to ask my friend Reverend John, the first person outside
my family to ever to hear it, if I should include it. He said, “You have to.
Because it is a story of hope, and somebody needs to hear it.”
Therefore, I am writing this because I have
been instructed to do so, and somebody needs to hear it. I am not doing so to
elicit any form of pity. I don’t want you to sympathize. This is about you, not
me. The worst emotion you can express to me is pity. Yes, expressing pity
towards me is actually worse than disagreeing with me. It’s a personality
defect buried deep in my DNA, and probably another reason this story has never
been shared before now.
Life is such a complicated existence. You
control much of it through the decisions you make. And then there are those
random, life-altering events which can impact us more than all the seemingly
important choices we can
ever make. And sometimes there is a bitter irony to
these circumstances, the type of randomness which would have one of the best
days of my entire life, followed by my absolutely worst day ever.
Welcome To Fatherhood
On Saturday morning, my first child was born. We named her
Allison. I was in the delivery room but didn’t actually observe much since any
mention of blood, or even medical conditions make me extremely queasy. It was an
uncomplicated, easy birth with no problems. After spending time with my wife
and daughter, I headed home, totally immersed in the euphoria of new
fatherhood.
The first indication of trouble was when my wife called that
evening to inform me that Allison had been transferred to Akron Children’s
Hospital. But this didn’t alarm me at all. During our child-birthing classes,
they had told us that babies get transferred to there all the time for minor,
routine ailments and not to worry if that happened.
So, I was not concerned. However, I was upset that they did
this. It would delay us from bringing Allison home and interfere with my
schedule. This is an example of how selfish of a young man I was. This tendency
may have eventually destroyed my life. But my perspective on many things, even
life itself, was about to change drastically. I just didn’t know it yet.
The next morning, I went to church and received the joyous
congratulations of all my friends, still basking in the exhilaration of being a
new father. I headed back to the hospital to see my wife right after lunch.
I did think it was odd that my wife was not in her room,
but I was still clueless about the severity of the situation. I sat down and waited,
watching the Browns game on a 5” hospital television. However, I began to feel
uneasy as the minutes passed.
Eventually, a nurse appeared. She seemed surprised to see
me. With a blank expression, she said, “Mr. Ake?” (I nod) “Please follow me.”
Before I could ask a question, she spins out of the room,
and I have to hurry to catch up. It was about this time that the feeling of
impending doom arrived. It would be an extended stay.
She led me to a “family waiting room”, where my wife and
her parents were sitting. They are distraught. They uttered greetings and
returned to staring at the floor. I knew that my daughter wasn’t dead because
no one was crying, but things had to be bad, really, really bad.
When I asked what was wrong, my wife holds up her hand and
tells me to wait for the doctor. The answer to the question being too painful
for her to even say.
The doctor soon appears and informs me with a straight
poker face and no emotion in his voice that my daughter suffered a severe
cerebral hemorrhage at birth. He then delivers the following prognosis:
1. Your
daughter probably won’t survive today.
2. If she
survives today, she probably won’t survive tomorrow.
3. If she
survives tomorrow, there is a critical time in two weeks that she will have to
get through.
4. If she
makes it through that, she will live with severe brain damage.
There was not much hope in that statement.
Welcome to fatherhood. I hope you enjoy it,
because it isn’t going to last very long.
End of Part 1
Next time: Part 2 - The Valley of the Shadow of Death
I just read about how our friend April mourns how her son can't speak due to his disability. My son Michael suffered anoxia at both and was not expected to live more than a couple of hours. He had seizures for more than thirty hours. He's now thirty,vwalks with a cerebral palsy gait, speaks a little, but is happy most of the time. I'm eagerly waiting to hear your next installment and am praying for the outcome.
ReplyDeleteRussell, there are these cases all around us and they just fade into background. One reason to tell my story is to try to give voice to all these stories. And raising these children shapes our lives. You know how difficult it is.
ReplyDeleteOh no! I'm so sorry! I hope the next installment is happier. :(
ReplyDelete*hugs*
Oh Don - I cannot imagine the pain in writing this....
ReplyDelete